Abstract:
This qualitative study aimed at the quality of life of caregivers of children with
cerebral palsy. This research involved engaging in semi structured interview with
caregivers of children with cerebral palsy who shared their personal experiences,
concerns and perspectives on their quality of life. Through thematic analysis, common
themes emerged, shedding light on the four domains of these caregivers’ quality of life.
Physical health status, psychological well being, social relationships and environmental
experiences of caregivers’ of children with cerebral palsy. Physical strain under the
physical well being and chronic pain were frequently mentioned, leading to fatigue and
limitations in participating in daily activities. Emotional well-being was significantly
impacted, with caregivers expressing feelings of stress, anxiety, and isolation. The
demands of caring for a child with cerebral palsy, coupled with societal stigma and
limited social support, contributed to these emotional struggles. Financial difficulties
were also evident, with caregivers often living in precarious financial situations and
struggling to meet the needs of their children. Access to adequate healthcare and
specialized services for their child was a common concern, with some caregivers
relying on foundations and support organizations for assistance and information.
Support networks, such as Hearts, Hands and Voice Foundation, Ghana Federation of
Disabilities, and local community groups, played a vital role in providing information,
training, and social support to the caregivers. These resources helped caregivers acquire
knowledge, connect with others in similar situations, and receive assistance in their
caregiving responsibilities. The findings of this study contribute to the understanding
of the quality of life of caregivers of children with cerebral palsy. The research
highlights the need for increased awareness and support for caregivers, including access
to comprehensive healthcare services, financial assistance, and social support
programme. The recommendations derived from this study can inform the development
of interventions aimed at improving the quality of life of caregivers of children with
cerebral palsy.
Description:
A thesis in the Department of Special Education,
Faculty of Educational Studies, submitted to the School of
Graduate Studies in partial fulfillment
of the requirements for the award of the degree of
Master of Philosophy
(Special Education)
in the University of Education, Winneba
